There may be a cure for dwarfism — but some call it unethical

Although vosoritide may help to rid children with achondroplasia of future health problems, some have deemed it controversial since it would “fix” their short stature.

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“People like me are endangered and now they want to make me extinct,” said Leah Smith, a spokeswoman for Little People of America, told the Guardian.

“If I could take a drug to get rid of my spinal stenosis [when the spinal column narrows and starts to compress the spinal cord], I would take it,” disability lecturer Erin Pritchard, who has achondroplasia, told the Guardian. “But to get rid of my identity as a person with dwarfism, to make me grow so that I fit in society and I don’t get stared at, pointed out, laughed at, photographed, I think that’s where it gets problematic, because I should not have to change to fit in with a prejudiced society.”

Defendants argue that the drug does not rid takers of their achondroplasia, but it simply makes it easier to physically function.

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