After 10 more days of tests and meetings, we were in the 23rd week and had to make a decision. My husband is more conservative than I am. He also is a Catholic. I am an old-school liberal, and I am not religious. But from the start, and through this ordeal, we were in complete agreement. We desperately wanted this child and would do whatever we could to save him, if his hernia was fixable and he could have a good quality of life.
Once we had all the data, we met with a nurse, a surgeon and a pediatrician at the hospital. The surgeon said our boy had a hole in his diaphragm. Only one lung chamber had formed, and it was only 20 percent complete. If our boy survived birth, he would be on oxygen and other life supports for a long time. The thought of hearing him gasp for air and linger in pain was our nightmare.
The surgeon described interventions that would give our son the best chance of surviving birth. But the pediatrician could tell that we were looking for candid guidance. He cautioned that medical ethics constrained what he could say, then added, “Termination is a reasonable option, and a reasonable option that I can support.” The surgeon and nurse nodded in agreement. I burst out sobbing. My husband cried, too. But in a sense, the pediatrician’s words were a source of comfort and kindness. He said what we already knew. But we needed to hear it from professionals, who knew we were good parents who wanted what was best for our children.