Moving toward death as the default option

posted at 9:12 am on August 3, 2009 by
[ Healthcare ]   

For background you may read this post in which we discuss the reports that the end-of-life counseling provision in HR 3200 is mandatory, the charges that that claim is a lie being spread to scare the elderly, and ambiguity of the actual provision.

Now I find that much smarter people than I are looking at the bill and finding it dangerously ambiguous.

From Junkfood Science, the argument that HR 3200 could indeed mandate periodic end-of-life counseling. Please go there to read Sandy Szwarc’s well-researched piece.

She draws on the Bioethics Defense Fund for evidence from HR 3200:

The House version of the Obama Health Care Plan provides:

The term “requirement” on page 428, line 22 supports the interpretation that such consultations are mandatory;

Such an interpretation of this vague and overbroad bill would require that the consultation take place every 5 years or more frequently if there is a “significant change in the health condition of the individual”; (p. 428, lines 17-25)

That consultation by an undesignated physician, nurse practitioner or physician assistant “may include the formulation of an order regarding life sustaining treatment”; (p. 429, lines 1-3)

“Order regarding life sustaining treatment” is defined as an “actionable medical order” that “is in a form that stays with the individual and [is] followed by health care professionals and providers across the continuum of care.” (p. 429, line 4-16);

The order may indicate treatment ranging from “full treatment to an indication to limit some or all or specified interventions” including “the use of antibiotics” and “the use of artifically administered nutrition and hydration.” (p. 430, lines 4-17)

What the bill does NOT say:

The wording of the bill does not provide that the individual must consent to the “actionable medical order regarding life sustaining treatment.”

The bill does not clarify whether the end of life counseling is optional for the provider or the patient.

The bill is also silent on whether the physician or other health professional writing the order will be your personal health care provider.

The ambiguity of the bill leaves the door wide open:

SUMMARY: This broad and imprecise bill is wide open to be interpreted as mandating “advanced care planning consultations” — giving the government unprecedented power in shaping who makes the decisions regarding your personal healthcare decisions after the age of 65.

Szwarc’s conclusion concurs with Betsy McCaughey’s: Mandatory or not, the bill provides for coercion of the elderly to sign advance directives.

Szwarc quotes Wesley J. Smith, who agrees that the bill is ambiguous and suggests language that would close the door on interpretations that the counseling would be mandatory:

It sure isn’t clear from the face of the bill and would require exploring the referenced statues I quoted above. And then there is this provision on page 428:

The Secretary shall limit the requirement for explanations under clause (i) to consultations furnished in a State—‘‘(I) in which all legal barriers have been addressed for enabling orders for life sustaining treatment to constitute a set of medical orders respected across all care settings;

It shouldn’t be this hard to figure out.

Regardless, if mandatory counseling is not what the president and Congress really have in mind, it would be very easy to correct any confusion:

1. Add a provision stating that the counseling is entirely voluntary–both for the patient and the medical provider. In that way, the regulations–that will be thousands of more pages–promulgated by the agencies to further the purpose of the law won’t be able to require counseling.

2. Add a provision stating that the patient will not lose benefits if he/she refuses counseling or does not sign an advance directive.

3. Add a provision that no service provider will lose compensation for not providing counseling.

4. Add a provision prohibiting the counseling from being directed toward refusing or accepting care–along the same lines of the Kennedy/Brownback bill passed last year to prevent genetic counseling of pregnant women carrying a Down baby from being directed toward abortion.

But wait, there’s a lot more. In the second half of her article, Szwarc give us the history of the “lives not worth living” campaign. Please read. It will turn your blood to ice water. Social engineers are working like the devil to make death the default option. See Wesley Smith’s Obamacare: Example of Why Some Fear “Counseling” About End-of-Life Care Could Become “Persuasion”:

Here is an example of why I believe that the fear is realistic. The Center for Practical Bioethics has published a “Caring Conversations” workbook, in which intimate issues and details of life, death, and end of life options are raised.  Nothing wrong with that, in and of itself, of course.  It all depends on how it is done.

In this regard, it is worth nothing that workbook contains an advance medical directive that has a default position of refusing life-sustaining treatment and participating in medical experimentation when the person will not be restored to health.

Read the rest.

We’ve talked before about the power of the default option. It’s multiplied when applied to the elderly. Remember how vulnerable they are and how much they generally respect their doctors’ advice. Americans need to pay attention to this and take heed of that queasy feeling they’re getting.

Blowback

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The main page, I notice, has a link to a recent OR story on a patient not being eligable for Chemotherapy throught he government system, but the state will happily pay for the assisted suicide. This type of thinking is an unintended consequence of making life part of a big actuarial table in a government system.

I wonder how the lion of the Senate might feel about his healthcare bill if his doctor came to visit his bedside to talk about needles instead of drugs?

jdfister on August 3, 2009 at 9:56 AM

Pundette, I have the impression from reading your posts and some of their links that this counseling and the pursuant orders to end treatment might be given by someone other than the doctor that has been selected by the patient for their care. None of these orders could be followed by licensed nurses without a complete make over of the nurse practice acts in every state in the union. It would be a major violation of medical ethics for a nurse to follow any order or for a hospital to facilitate and encourage the carrying out of any order that did not originate with the patient’s own doctor. This could result in the nurse losing his license and/or going to jail.
Basic to ethics as enshrined in all state laws is the concept that the patient makes all decisions about their own care. These decisions are made with the advice and consent of the patient’s doctor. But the decisions must be made by the patient.
I hope this doesn’t come across as too inside baseball. But these laws and ethical values are at the root of everything done by doctors, nurses and hospitals. My impression is that whoever is writing this legislation is operating in complete ignorance of ethical guidelines and the medical practice acts in all the states. This is why much more time must be spent in thoughtful writing of legislation. Having worked in a congressman’s office, on Obama’s campaign or in city hall in Chicago does not give one the understanding of medical treatment necessary to write decent, workable laws.

snaggletoothie on August 3, 2009 at 10:55 AM

As an attorney, I associate the term “ORDER” with some authority.

I associate the term “directive” with an expression of the patient’s wishes.

If the drafters of this bill want to remove any question regarding this very controversial provision (which would still be very creepy), any time they use “order” they should simply insert “patient’s directive“. That would make it clear that the patient was calling the tune, and not some authority.

Ragspierre on August 3, 2009 at 11:06 AM

Ragspierre
It is not that simple. The mere fact of something being a directive of a patient is not sufficient to make it part of that patient’s treatment in licensed facilities. Most all care must be approved and ordered by the patient’s doctor. Patients without the assistance of a doctor are not trained and educated enough to direct their own care. This is pretty much legally in concrete.

snaggletoothie on August 3, 2009 at 11:23 AM

As I wrotes earlier:

“I said, ‘Give me liberty or give me death!’, but they replied, ‘I’m sorry, we’ve run out of option #1 in the government rationing plan. Enjoy Heaven!’”

Abby Adams on August 3, 2009 at 11:48 AM

The mere fact of something being a directive of a patient is not sufficient to make it part of that patient’s treatment in licensed facilities.

Well, in my experience, a “patient’s directive to physicians” IS pretty darned effective.

They do not delve into the minutiae of treatment, but deal with big issues, as I’m sure you are aware. Any physician who violated their patient’s directive knowingly would certainly open themselves up to considerable liability.

Nor do I suggest that there is anything simple about this controversy. It is an incredible intrusion to merely suggest that anything like this sort of “counseling” should be required.

Ragspierre on August 3, 2009 at 11:50 AM

Rags,
Yes the counseling is intrusive. But one of my points is that for for it to even be done at all against to will of the patient and his doctor goes against everything that has been ethically and legally accepted up until now.
I suspect we are in total agreement but approaching it from different perspectives.

snaggletoothie on August 3, 2009 at 12:03 PM

But one of my points is that for for it to even be done at all against to will of the patient and his doctor goes against everything that has been ethically and legally accepted up until now.

I totally agree. It is fundamental paradigm shift that is being forced on us. All of medical ethics is subject a complete revolution under the idea of government inserting itself between you and your health care provider.

I’ve heard people complain for years about how insurance companies get between them and their doctor. Bullspit. You CAN fire your insurance company, go around them, or fight them (one of the things I do as an attorney).

Try firing the Federal government. Try going around them. Try suing them.

Ragspierre on August 3, 2009 at 12:32 PM


But these laws and ethical values are at the root of everything done by doctors, nurses and hospitals.

snaggletoothie on August 3, 2009 at 10:55 AM

I’ve read the advance care planning sections 425-431.

snaggletoothie you are correct your assessment about the nature of these “professionals” and the consequences to state law.

There is no such thing as an Advance Care Plan Consultant; they just made it up in the bill and tried to piggy back it on other regulated professions without considering the fact that it may conflict with state regulations of those professions. All professions are regulated by the state (even some that shouldn’t be): realtors, attorneys, surveyors, hairdressers etc. If the answer is that the federal law preempts the state law, then the federal government can preempt ALL state regulation of MDs and RNs.

Espousal of a death philosophy is not the practice of medicine. If only those health care professionals who personally believe in euthanasia can provide these consultations, we will be left with only those people giving consultations. Who would engage a professional who’s actually serving a third-party interest, the government?

The bill requires this ACPC to explain ”…living wills and durable powers of attorney, and their uses.” I believe this would be considered the unlicensed practice of law in most states, which, in PA at least, is a misdemeanor. Again, if the defense is federal law preempting state law, then the federal law can preempt the state supreme court’s regulation of the practice of law.

I was curious about the supposed mandatory nature of these consultations. What if the recipient of the consultation refused? I found no sanctions for refusal in the adjacent language. Could the federal government deny further benefits if one refused a consultation?

Where would these consultations occur? In the home? In a hospital room? Wouldn’t they need a search warrant?

This wholesale preemption of state laws should cause some concern in state governments.

casel21 on August 3, 2009 at 7:27 PM

When I began commenting about this issue I was mainly looking at it from the point of view of a nurse routinely giving care in a hospital. If the ‘end of life’ counselor is an MD but has not been formally placed on the treatment team by the primary MD, a nurse could end up in a stifling legal bind. If the counseling MD orders withholding of care and the patient dies the nurse is in danger of being sued by the patient’s family or even going to jail for failing to follow the primary physician’s orders. If the nurse ignores the order to withhold care, he might lose his job or suffer some kind of sanction from his employer as well as the Wrath of Obama for letting a Republican live even unto election day. A very uncomfortable case of damned if you damned if you don’t. And all because whoever is writing this bill wants a major paradigm shift and all most of the rest of us want is just health care as uncomplicated as possible. (And who is writing this bill? Does anyone know?)

snaggletoothie on August 4, 2009 at 12:44 PM